Bo Johnson is 13 years old and absolutely amazing! He was diagnosed with Leukemia about a year ago and was just told that in his 13th year, he cannot beat it anymore...so Bo went home to Sister Bay to be with his family and friends to live out his day~
Doctors told Bo he developed a rare and fatal form of Leukemia. As he copes with his fate, Bo hopes his effort to cure childhood cancer will live on after he is gone.
Bo has always wanted a souped up, burnt orange Chevy El Camino.
On Sunday, Bo, 13, and family and friends got to go and meet the Green Bay Packers. When Bo and his family were told he didn't have long to live, the Make-A-Wish Foundation supplied the ride as well as a once in a lifetime Packers experience with family and friends.
"I (got) to go out on the field,” said Bo. “I met the best – to me – the best athlete in the whole NFL," he added about meeting with Green Bay Packers quarterback Aaron Rodgers prior to the Packers-San Francisco 49ers football game.
"I've gotten to do things I've never thought I would ever do before."
While jet skiing over Labor Day weekend, the Sister Bay native suffered a fractured pelvis.
Weeks later after being on crutches, his mother Annika Johnson says he started to feel more and more pain in his body.
After numerous tests, doctors and hospitals, doctors finally diagnosed Bo with Acute Myeloid Leukemia, or AML.
Johnson says Bo went through both radiation, chemotherapy and seemed to be doing well.
But on his 13th birthday, Bo was diagnosed with a more aggressive form of the disease called Extramedullary Acute Myeloid Leukemia and underwent a bone marrow transplant.
She says everything seemed to be progressing as well as one could expect, until about two weeks ago.
"Unfortunately there is nothing more we can do for Bo's Extramedullary Leukemia,” recalled Johnson of when the doctors told Bo and the rest of his family. “He is going to die from his disease."
"I've tried to be a good mom,” added Johnson. “I've tried to instill good values in him. But what I've learned from this kid - I didn't teach him."
Johnson says throughout it all, Bo has shown maturity beyond his years.
"As my goal, I would like to cure childhood cancer," said Bo.
The "Go Bo Fund" had been established for the community to help Bo get through treatments.
Bo planned on taking it over when he beat cancer.
Now he hopes the fund will help others.
"(For) a 13-year-old, I should be doing stuff 13-year-olds do,” said Bo. “But now, I just want to do more serious stuff in the world to make a difference."
It's an attitude his cousin looks up to.
"He's just made it so far,” said Thor Johnson. “It's not that he lost the fight - he's still fighting."
And living his days to the fullest.
Bo is currently in hospice care at home in Door County.
An account for the Go Bo Fund is set up at the Sister Bay/Northern Door Associated Bank. It can be reached at (920) 854-2339.